What you need to know

If you choose to participate in the trial of INFO4NETs, you will be given access to the platform.

You will then be required to enter some information about yourself such as, your age, gender, if you are a person with NETs or carer, how long since you were diagnosed, as well as your email address.

Once you enter the platform you can navigate through as you choose, being asked along the way to provide some feedback. You will also be required to complete a short questionnaire at the end, which should take about 10mins.

You will be asked throughout using the platform if you would prefer a follow-up call from the NET Nurse. If you choose to receive a call from the NET Nurse, you will also be asked to enter your name and phone number. You can expect to receive this call within 2-3 business days of providing your contact details

If you want to provide further feedback you can also opt in to provide your contact details so that we may contact you for a short interview at a later date. 

Any personal information you provide to us will be kept securely and in accordance with the Neuroendocrine Cancer Australia Privacy Policy. Your data will only be accessed by a member of the research team.

It is anticipated that the results of this research project will be published and/or presented in a variety of forums. In any publication and/or presentation; information will be provided in such a way that you cannot be identified, except with your express permission.

If you want any further information concerning this project or if you have any problems which may be related to your involvement in the project, you can contact the researcher:

Dr Lisa Guccione
Post-doctoral Research Fellow,
Cancer Experiences Research
INFO4NETs@neuroendocrine.org.au